The most immediate present and future of ALS Connections
We have been a little quiet recently. In fact, we have done a little soul searching. Much of what we do on this site is the work of two people, and our lives have been very busy. We also got word that the technology behind our video platform was closing its doors. We seriously were giving consideration to shutting the site, figuring that it was no longer as useful as it needed to be. After all, we have some out of date items, it is hard to search for archived news, and links are broken on the site to previously working feeds. That represents a lot of work.
But, before we simply gave up, we decided to poke around. And, what we found, encourages us to revamp the site. We are able to reshape the resources section with easier to navigate profiles that can be updated by the owners. We can add a more robust crowdfunding platform directly to the site to assist with your fundraising needs. We can revamp the way our feeds work to make sure we are delivering the latest news and information, but in a way that you can connect it with archived stories to assist you in research. We think we even found a way to keep the video platform going and improve it as well.
So, we look forward to a new beginning for ALS Connections as we look to build a robust resource for you. In the meantime, you will see a lot of this website begin to go dark as we prepare for new technology to be added to the site. That does not mean that we are not going to be active. In fact, we want to encourage you to join us at several upcoming events:
March 25, 2014 – LiveLikeLou.org will hold their first telethon and media partner WTAE – 4 in Pittsburgh will stream it live on the web. Tune in at 8 PM and see a very special ALS story and support the mission of LiveLikeLou.org as they make a difference in a patient, family or researcher’s life. More information is available at http://www.wtae.com/chronicle-editions and you are invited to make a donation at https://community.pittsburghfoundation.org/sslpage.aspx?pid=512.
May 3, 2014 – I never updated you on my sky dive adventure. As luck would have it, I was getting my safety briefing when weather rolled in and I was not able to jump. In life, we always look for a second chance and Skydive for the Cure will return on May 3. Your generous donations of over $750.00 will be honored as I am slated to be #3 out of the plane that morning. I invite you to join the festivities which include music and other activities along with 100 brave souls jumping from a perfectly good airplane for the Brigance Brigade. Information on the event is available at http://www.skydive4als.com/. You can support me with a small donation at http://www.gofundme.com/3t49g4#sthash.758QuNkE.dpuf.
June 6-8 – Hope Loves Company announced HLC Camp 2014. This is a three day overnight camp for teens and young adults who have or have had a parent/grandparent with ALS. The camp is free, but we invite you to support Hope Loves Company. More information is available at http://www.hopelovescompany.com/#!camp-hlc/c1g93. Melissa attended last year and even overcame her fear of heights. So much so, that she will also Skydive for a Cure in May.
That is our immediate present and future. I ask that you bear with our dust as we remodel this site and as always, we look forward to hearing your ideas.
Christopher and Melissa
The Team behind ALS Connections
- Posted: March 21st, 2014 | Comments: 0